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SHAPING the future of CF CARE 2025

9-10 MAY 2025

AUCKLAND

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Be a part of shaping the future of CF care

In 2025, Cystic Fibrosis NZ will be proudly hosting a New Zealand Cystic Fibrosis Symposium. The symposium aims to create a platform for sharing knowledge, discussing advancements, and building partnerships to enhance the quality of life for individuals with cystic fibrosis.

This event will embrace a multidisciplinary approach, fostering valuable networking and collaboration across all fields to drive improved health outcomes for Kiwis living with cystic fibrosis.

Join us for this important event to contribute to the collective effort of shaping the future of CF care.

Our speakers.

We are excited to bring you a great line up of global and local experts who are at the forefront of cystic fibrosis care, research, and innovation.

 

Our speakers come from diverse disciplines, bringing a wealth of knowledge and insights that will shape the future of CF treatment and care. From clinical trials to cutting-edge research, these thought leaders will share their expertise, explore emerging challenges, and offer insights so we can improve health outcomes and quality of life for those living with cystic fibrosis.

​

Stay tuned as we unveil our full speaker lineup and the impactful sessions they’ll be leading at this not to be missed event.

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Dr Elizabeth Tullis
MD, FRCPC

Professor Scott Bell
MBBS MD FRACP FAHMS FThorSoc GAICD

Maggie Harrigan

Dr Yelizaveta Sher
MD, FACLP

Director of the Toronto Adult Cystic Fibrosis (CF) Clinic at St. Michael's Hospital

Senior Thoracic Physician

The Prince Charles Hospital

Social Worker, UWA Doctoral researcher and IRH Honorary Research Fellow

Clinical Professor of Psychiatry and Deputy Chief of Division of Medical Psychiatry at Stanford.

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Dr Mark O'Carroll
MB ChB 1995; FRACP 2003

Adult Respiratory Consultant and Transplant Consultant

Auckland City Hospital

Professor Cass Byrnes
MBChB, FRACP, MD

CFNZ Clinical Advisory Panel Chair, Professor in the Paediatric Department of University of Auckland and a Paediatric Respiratory Specialist at Starship Children's Health and

Kidz First Hospital

A/Prof Tonia Douglas

MBChB, FRACP, MD

Co-Director Cystic Fibrosis Services, Senior Staff Specialist, Queensland Children's Hospital Clinical Associate Professor,

The University of Queensland

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Lisa Burns

Chief Executive, Cystic Fibrosis NZ

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Dame Pieter Stewart
DNZM

Board Chair, Cystic Fibrosis NZ

Further speakers still to be announced.

Programme

The below programme outline is an indication of the agenda, it may change as we finalise speakers and guests.

💙 Important Note: Due to cross-infection risks, we kindly ask that no one with cystic fibrosis attend in person. Rest assured, sessions will be recorded and made accessible after the event.

THURSDAY 8 MAY 2025

6:00 PM TO 8:00 PM

Welcome Function - invitation only

Waipuna Hotel and Conference Centre, Promenade Room

Join us as we kick off the start of the symposium.

DAY ONE
FRIDAY 9 MAY 2025

7:30 AM

Registration opens

9:00 AM

Karakia and opening address

Welcome and presentation on the New Zealand context post modulators

Launch of the CF Digital Village

9:30 AM

Opening plenary | keynote

Life and models of care in the post modulator era

Dr Elizabeth Tullis

10:00 AM

Panel session

The evolving and changing role of the MDT

Facilitator - Dr Mark O'Carroll

Panel may include the following:

  • CF Specialist / Transplant

  • CF Nurse Specialist

  • Physiotherapist

  • Dietician

  • Social Worker

  • Psychiatrist

  • Pain Specialist

10:30 AM

MORNING TEA

11:00 AM

Plenary Two | keynote

Psychosocial and mental health in CF in the modern era of care, time to evolve with Q&A

Maggie Harrigan

12:00 PM

Research and clinical trials

  • What are we doing for those where modulators are not an option?
    Looking down the road with new treatments, therapies, and clinical trials.

Professor Scott Bell

  • What are we doing to make life better and ease the burden of CF treatments?

Dr Elizabeth Tullis

Followed by Q&A

12:50 PM

LUNCH

DAY TWO
SATURDAY 10 MAY 2025

7:30 AM

Registration opens

9:00 AM

Karakia and opening address

Welcome from CFNZ Board Chair and Chief Executive

Launch of the CF Digital Village

9:30 AM

Opening plenary | keynote

Living well with CF, a focus on psychosocial and mental health.

Maggie Harrigan

10:00 AM

Panel session

CF in the post-modulator era with Q&A

(perspectives from the community)

Facilitator - to be confirmed

Panel may include:

  • Adult with CF

  • Parent of a young child with CF

  • Family member of a person with CF (brother or sister)

  • Parent with a teenager with CF (post transplant)

  • Spouse of a person with CF

10:40 AM

MORNING TEA

11:00 AM

Research and clinical trials

  • What are we doing for those where modulators are not an option?

  • What are we doing to make life better and ease the burden of CF treatments?

Dr Elizabeth Tullis

11:30 AM

Panel presentations

  • Mental health

  • Nutrition and diet

  • Physio and exercise

  • Diabetes

Speakers - to be confirmed

12:45 PM

LUNCH

1:30 PM

Life in a post-modulator era

Dr Elizabeth Tullis

1:45 PM

Panel discussion

Case presentations with a focus on BMI and obesity, diet and nutrition, alongside new emerging co-morbidities.​

Dr Elizabeth Tullis

Final speaker line up to be confirmed:

2:15 PM

Concurrent workshop sessions

Workshop Chair for each session to be confirmed.

You can select your workshop preference when you register.

Workshop 1A

Transition: age and stage

Workshop 1B

Changing and future models of care.

Workshop 1C

Using technology as a future enabler for care models.

3:00 PM

AFTERNOON TEA

3:30 PM

Concurrent workshop sessions

Workshop Chair for each session to be confirmed.

Workshop 2A

Sexual and reproductive health

Workshop 2B

Discussing CF SPID

4:00 PM

Plenary Three | keynote

Aging with grace

Dr Yelizaveta Sher, MD, FACLP

5:00 PM

EVENT CONCLUDES

2:30 PM

Concurrent sessions - PART 1

Session Chair for each session to be confirmed.

Session 1A

Transition: age and stage

Session 1B

Transplant and modulators

Session 1C

Modulators for 2 to 5 year olds

Session 1D

Sexual and reproductive health

3:00 PM

Concurrent sessions - PART 2

Session Chair for each session to be confirmed.

Session 2A

Transition: age and stage

Session 2B

Siblings

Session 2C

Modulators for 2 to 5 year olds

Session 2D

Sexual and reproductive health

3:30 PM

AFTERNOON TEA

4:00 PM

Plenary Three | keynote

Aging with grace

Dr Yelizaveta Sher, MD, FACLP

4:30 PM

Plenary Four | keynote

Lived experience with CF today

Speaker - to be confirmed

5:00 PM

EVENT CONCLUDES

Registration.

Don't miss your chance to be part of the NZ Cystic Fibrosis Symposium 2025 at a special early bird rate!

Register by 31 March 2025 to secure your early bird registration.​

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64 Grafton Road, Auckland 1010

PO Box 110 067, Auckland Hospital 1148

P/    09 308 9161

E/    community@cfnz.org.nz

W/   www.cfnz.org.nz   

Charity # CC10274

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