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9-10 MAY 2025

AUCKLAND

Brought to you by

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Shaping the future of cystic fibrosis care.

Waipuna Hotel & Conference Centre

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Be a part of shaping the future of CF care

In 2025, Cystic Fibrosis NZ will be proudly hosting a New Zealand Cystic Fibrosis Symposium. The symposium aims to create a platform for sharing knowledge, discussing advancements, and building partnerships to enhance the quality of life for individuals with cystic fibrosis.

This event will embrace a multidisciplinary approach, fostering valuable networking and collaboration across all fields to drive improved health outcomes for Kiwis living with cystic fibrosis.

Join us for this important event to contribute to the collective effort of shaping the future of CF care.

Our speakers.

We are excited to bring you a great line up of global and local experts who are at the forefront of cystic fibrosis care, research, and innovation.

 

Our speakers come from diverse disciplines, bringing a wealth of knowledge and insights that will shape the future of CF treatment and care. From clinical trials to cutting-edge research, these thought leaders will share their expertise, explore emerging challenges, and offer insights so we can improve health outcomes and quality of life for those living with cystic fibrosis. ​

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Programme

The programme is accurate as of the time of publishing; however, please note that it may be subject to change. Stay tuned for any updates adjustments that may arise.

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💙 Important Note: Due to cross-infection risks, we kindly ask that no one with cystic fibrosis attend in person. Rest assured, sessions will be recorded and made accessible after the event.

THURSDAY 8 MAY 2025

6:00 PM TO 8:00 PM

Welcome Function - note this an invitation only event

Waipuna Hotel and Conference Centre,

Horizon Lounge

Join us as we kick off the start of the symposium.

7:30 AM

REGISTRATION OPENS

9:00 AM

Welcome and opening address:

BANQUET 1 & 2

MC - Lisa Burns, CFNZ CEO

  • Karakia

  • New Zealand context post modulators.

    • Professor Cass Byrnes

  • Shaping the future of CF care.

    • Lisa Burns

  • Official opening.

    • Hon. Simeon Brown

9:30 AM

Opening plenary | keynote:

BANQUET 1 & 2

  • Life and models of care in the post modulator era

    • Professor Elizabeth Tullis

10:00 AM

Panel session

BANQUET 1 & 2

The evolving / changing role of the Multi-Disciplinary Team (MDT)

Facilitated by - Dr Mark O'Carroll

Panel includes:

Professor Elizabeth Tullis​

CF Adult Consultant

Associate Professor Tonia Douglas

CF Paediatric Consultant

Cath Lamont

CF Adult Nurse Specialist

Jane Willis

Clinical Nurse Consultant Coordinator​

Jenny Hauser

Physiotherapist

Dr Julianna Bailey

Dietician

Maggie Harrigan

Social Worker

Dr Yelizaveta Sher

Psychiatrist

10:30 AM

MORNING TEA

11:00 AM

Plenary 2 | keynote:

BANQUET 1 & 2

Psychosocial and mental health in cystic fibrosis in the modern era of care: time to evolve. Presentation of co-authored paper.

Maggie Harrigan and
Assoc. Prof Tonia Douglas

12:00 PM

Plenary 3 | keynote:

BANQUET 1 & 2

Advances in CF Research and Emerging Therapies

Professor Scott Bell by Zoom

Easing the burden of CF treatments and improving quality of life.

Professor Elizabeth Tullis

Followed by Q&A

1:00 PM

Plenary 4 | keynote:

BANQUET 1 & 2

Using CF data to improve care: How real-world data is shaping approaches and outcomes.

Rasa Ruseckaite

1:15 PM

LUNCH

2:00 PM

WORKSHOPS PART ONE

Workshop 1:
CONFERENCE ROOM 1

Transition: age and stage
Facilitators - Maggie Harrigan, Dr Yelizaveta Sher and Associate Professor Tonia Douglas
Workshop 2:
CONFERENCE ROOM 2

Changing and future models of care including the role of primary health providers

Facilitators - Professor Elizabeth Tullis, Professor Cass Byrnes, Jenny Hauser, and
Dr Julianna Bailey

Workshop 3:
CONFERENCE ROOM 3

Using technology in responding to changing care models with a focus on remote monitoring.
Facilitators - Dr Mark O’Carroll, Jane Willis and Rasa Ruseckaite

3:00 PM

AFTERNOON TEA

3:30 PM

WORKSHOPS PART TWO

Workshop 1:
BANQUET ROOM 1
Paediatrics
Facilitators - Professor Cass Byrnes and Associate Professor Tonia Douglas

This session is for:

  • CF Paediatric Consultants

  • Respiratory Physicians

  • Registrars

  • House Officers

  • Those who have an interest in paediatric care.

Workshop 2:
BANQUET ROOM 2
Adults and Transplant

Facilitators - Professor Elizabeth Tullis and Dr Mark O'Carroll

This session is for:

  • CF Adults Consultants

  • Respiratory Physicians

  • Transplant Physicians

  • Transplant Coordinators

  • Registrars

  • House Officers

  • Those who have an interest in adult care including transplant.

Workshop 3:
CONFERENCE ROOM 1
Nursing
Facilitators - Cath Lamont, Dee Campbell, and Jane Willis
This session is for:
  • CF Nurse Specialists

  • CF Nurses

  • Respiratory Nurses

  • Ward Nurses

  • Those who have an interest in nursing.

Workshop 4:
CONFERENCE ROOM 2
Psychosocial

Facilitators - Maggie Harrigan and Dr Yelizaveta Sher
This session is for:
  • Social Workers

  • Psychologists

  • Psychiatrists

  • Those who have an interest in mental health, psychosocial care, and wellbeing.

Workshop 5:
CONFERENCE ROOM 3
Hollistic health - physio and dieticians

Facilitators - Dr Julianna Bailey,
Emily Sycamore, and Jenny Hauser

This session is for:

  • Dieticians

  • Physiotherapists

  • Those who are interested in diet, weight management, physiotherapy.

4:30 PM

Plenary 5 | keynote

BANQUET 1 & 2

Aging with grace

Dr Yelizaveta Sher

5:00 PM

DAY CONCLUDES

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7:30 AM

REGISTRATION OPENS

9:00 AM

Welcome and opening address

BANQUET 1 & 2​

MC - Lisa Burns, CFNZ CEO

  • Karakia

  • Shaping the future of CF care and the launch of the CF Digital Village with reflections from Day 1.

    • Professor Cass Byrnes and Lisa Burns

9:30 AM

Opening plenary | keynote

BANQUET 1 & 2

  • Connected, compassionate, empowered: strategies to promote psychological and social wellbeing.

    • Maggie Harrigan

10:00 AM

Plenary 2 | keynote

BANQUET 1 & 2

  • Life in the post-modulator era, what have we learnt so far?

    • Professor Elizabeth Tullis

10:30 AM

MORNING TEA

11:00 AM

Panel discussion:

BANQUET 1 & 2

  • The Lived experience of members of the CF community
    Panel will include members of the CF community including one person with CF who will give their perspective on their lived experiences.
    ​​

    • Facilitated by: Maggie Harrigan

11:45 AM

Plenary 3 | keynote

BANQUET 1 & 2

  • Advances in CF Research and Emerging Therapies

    • Professor Elizabeth Tullis​​

12:15 PM

Panel presentations - 15 minutes each

context for workshop sessions

BANQUET 1 & 2

Facilitated by - Assoc. Prof Tonia Douglas

  • Mental health and emotional wellbeing
    Bev Darlow

  • Nutritional changes and challenges in the post-modulator era
    Dr Julianna Bailey

  • Benefits of exercise and maintaining an active lifestyle, role of physio
    Jenny Hauser

  • Managing CF-related co-morbidities - CF related diabetes, digestive issues, bone health
    Professor Elizabeth Tullis

  • Q&A with the panel

1:30 PM

LUNCH

2:00 PM

WORKSHOPS PART 1

Workshop 1:
BANQUET 1 & 2

Navigating the first five years including the use of modulators.
Facilitators -  Professor Cass Byrnes and Assoc.Prof Tonia Douglas
Workshop 2:
CONFERENCE ROOM 1

Using technology in responding to changing care models with a focus on remote monitoring
Facilitators - Dr Mark O’Carroll,
Jenny Hauser and Rasa Ruseckaite
Workshop 3:
CONFERENCE ROOM 2

Continuity of care - a transition model that provides for consistency and support of young adults.
Facilitators - Maggie Harrigan, Dr Julianna Bailey and Dr Yelizaveta Sher
Workshop 4:
CONFERENCE ROOM 3

Fertility, pregnancy, and sexual health in CF.
Facilitators - Professor Elizabeth Tullis and Jane Willis

2:45 PM

AFTERNOON TEA

3:15 PM

WORKSHOPS PART TWO

Workshop 1
BANQUET 1 & 2

Building a stronger, more connected CF community including siblings and other family members.
Facilitators - Professor Cass Byrnes and Associate Professor Tonia Douglas
Workshop 2
CONFERENCE ROOM 1

Navigating psychosocial and mental health including neurodiversity, how to keep everyone safe.
Facilitator - Dr Yelizaveta Sher and
Maggie Harrigan
Workshop 3
CONFERENCE ROOM 2

Thriving longer: navigating aging transplant, and the evolving journey of CF.
Facilitators - Dr Mark O'Carroll
Workshop 4
CONFERENCE ROOM 3

Holistic approaches to CF care: diet, exercise, and lifestyle.
Facilitators - Dr Juliana Bailey and
Jenny Hauser

4:00 PM

Plenary 4 | keynote

BANQUET 1 & 2

  • Aging with grace

    • Dr Yelizaveta Sher

4:30 PM

Fireside chat with Lily Tew, adult with CF

BANQUET 1 & 2

  • Navigating the lived experience of CF and overcoming challenges

    • Facilitated by Maggie Harrigan

5:00 PM

COMMUNITY UNPLUGGED

At the conclusion of the symposium stay on for some drinks and nibbles to connect and share your experiences.

6:00 PM

EVENT CONCLUDES

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With thanks to our sponsors and partners

The NZ CF Symposium would not be possible without the generous support of our sponsors and partners.

Your commitment to advancing cystic fibrosis care and empowering the CF community has helped bring this important event to life.

Together, we are shaping a future where every person with CF can access the care, connection, and innovation they deserve.

Registration.

Don't miss your chance to be part of the NZ Cystic Fibrosis Symposium 2025 secure your seat and be a part of shaping the future of CF care in New Zealand.

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64 Grafton Road, Auckland 1010

PO Box 110 067, Auckland Hospital 1148

P/    09 308 9161

E/    community@cfnz.org.nz

W/   www.cfnz.org.nz   

Charity # CC10274

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