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9-10 MAY 2025

AUCKLAND

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Shaping the future of cystic fibrosis care.

Waipuna Hotel & Conference Centre

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Be a part of shaping the future of CF care

In 2025, Cystic Fibrosis NZ will be proudly hosting a New Zealand Cystic Fibrosis Symposium. The symposium aims to create a platform for sharing knowledge, discussing advancements, and building partnerships to enhance the quality of life for individuals with cystic fibrosis.

This event will embrace a multidisciplinary approach, fostering valuable networking and collaboration across all fields to drive improved health outcomes for Kiwis living with cystic fibrosis.

Join us for this important event to contribute to the collective effort of shaping the future of CF care.

Our speakers.

We are excited to bring you a great line up of global and local experts who are at the forefront of cystic fibrosis care, research, and innovation.

 

Our speakers come from diverse disciplines, bringing a wealth of knowledge and insights that will shape the future of CF treatment and care. From clinical trials to cutting-edge research, these thought leaders will share their expertise, explore emerging challenges, and offer insights so we can improve health outcomes and quality of life for those living with cystic fibrosis. ​

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Programme

The programme is accurate as of the time of publishing; however, please note that it may be subject to change. Stay tuned for any updates adjustments that may arise.

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💙 Important Note: Due to cross-infection risks, we kindly ask that no one with cystic fibrosis attend in person. Rest assured, sessions will be recorded and made accessible after the event.

THURSDAY 8 MAY 2025

6:00 PM TO 8:00 PM

Welcome Function - note this an invitation only event

Waipuna Hotel and Conference Centre,

Promenade Room

Join us as we kick off the start of the symposium.

DAY ONE
FRIDAY 9 MAY 2025

CLINICAL DAY

7:30 AM

REGISTRATION OPENS

9:00 AM

Karakia and opening address

  • Welcome and presentation on the New Zealand context post modulators becoming available in April 2023.

  • Launch of the CF Digital Village

Lisa Burns, Chief Executive CFNZ

Professor Cass Byrnes

9:30 AM

Opening plenary | keynote:

  • Life and models of care in the post modulator era

Professor Elizabeth Tullis

10:00 AM

Panel session

The evolving / changing role of the Multi-Disciplinary Team (MDT)

Facilitator - Dr Mark O'Carroll

Panel will include:

  • CF Adult Consultant - Professor Elizabeth Tullis

  • CF Paediatric Consultant - Assoc. Prof Tonia Douglas

  • CF Adult Nurse Specialist - Cath Lamont

  • Clinical Nurse Consultant Coordinator - Jane Willis

  • Physiotherapist - Jenny Hauser

  • Dietician - Dr Julianna Bailey

  • Social Worker - Maggie Harrigan

  • Psychiatrist - Dr Yelizaveta Sher

10:30 AM

MORNING TEA

11:00 AM

Plenary 2 | keynote:

Psychosocial and mental health in cystic fibrosis in the modern era of care: time to evolve

Presentation of co-authored paper

Maggie Harrigan and Assoc. Prof Tonia Douglas

12:00 PM

Plenary 3 | keynote:

Advances in CF Research and Emerging Therapies

  • What are we doing for those where modulators are not an option?

  • Looking down the road with new treatments, therapies, and clinical trials.

Professor Scott Bell

  • What are we doing to make life better and ease the burden of CF treatments?

Professor Elizabeth Tullis

Followed by Q&A

1:00 PM

LUNCH

2:00 PM

CONCURRENT WORKSHOP SESSIONS

PART 1

You can select your workshop preference when you register.

Workshop 1:

Transition: age and stage

Facilitator - Maggie Harrigan

Workshop 2:

Changing and future models of care including the role of primary health providers.

Facilitator - Professor Elizabeth Tullis

Workshop 3:

Using technology in responding to changing care models with a focus on remote monitoring.

Facilitator - To be confirmed

3:00 PM

AFTERNOON TEA

3:30 PM

CONCURRENT WORKSHOP SESSIONS PART 2

Workshop 1:

Paediatrics

Facilitators - Professor Cass Byrnes and

Assoc. Prof Tonia Douglas

This session is for:

  • CF Paediatric Consultants

  • Respiratory Physicians

  • Registrars

  • House Officers

  • Those who have an interest in paediatric care.

Workshop 2:

Adults and Transplant

Facilitators - Professor Elizabeth Tullis and Dr Mark O'Carroll

This session is for:

  • CF Adults Consultants

  • Respiratory Physicians

  • Transplant Physicians

  • Transplant Coordinators

  • Registrars

  • House Officers

  • Those who have an interest in adult care including transplant.

Workshop 3:

Nursing

Facilitators - Cath Lamont, Dee Campbell, and Jane Willis

This session is for:

  • CF Nurse Specialists

  • CF Nurses

  • Respiratory Nurses

  • Ward Nurses

  • Those who have an interest in nursing.

Workshop 4:

Psychosocial

Facilitators - Maggie Harrigan and Dr Yelizaveta Sher

This session is for:

  • Social Workers

  • Psychologists

  • Psychiatrists

  • Those who have an interest in mental health, psychosocial care, and wellbeing.

Workshop 5:

Hollistic health - physio and dieticians

Facilitators - Dr Julianna Bailey and Emily Sycamore, Jenny Hauser

This session is for:

  • Dieticians

  • Physiotherapists

  • Those who are interested in diet, weight management, physiotherapy.

4:30 PM

Plenary Three | final keynote

DAY TWO
SATURDAY 10 MAY 2025

COMMUNITY DAY

7:30 AM

REGISTRATION OPENS

9:00 AM

Karakia and opening address

  • Welcome and launch of the CF Digital Village

Lisa Burns, Chief Executive CFNZ

Professor Cass Byrnes

9:30 AM

Opening plenary | keynote

  • Living well with CF, a focus on psychosocial and mental health.

Maggie Harrigan

10:00 AM

Plenary 2 | keynote

Life in the post-modulator era, what have we learnt so far?

Professor Elizabeth Tullis

10:30 AM

MORNING TEA

11:00 AM

Panel session

The Lived Experience of CF

Facilitator - Maggie Harrigan

Panel will include members of the CF community including one person with CF who will give their perspective on their lived experiences.

11:45 AM

Plenary 3 | keynote

Advances in CF Research and Emerging Therapies

  • What are we doing for those where modulators are not an option?

  • What are we doing to make life better and ease the burden of CF treatments?

Professor Elizabeth Tullis

12:15 PM

Panel presentations

context for workshop sessions

Facilitator - Assoc. Prof Tonia Douglas

  • Mental health and emotional wellbeing
    Maggie Harrigan

  • Nutritional changes and challenges in the post-modulator era
    Dr Julianna Bailey

  • Benefits of exercise and maintaining an active lifestyle, role of physio
    Jenny Hauser

  • Managing CF-related co-morbidities - CF related diabetes, digestive issues, bone health
    Professor Elizabeth Tullis

  • Q&A with the panel led by Assoc. Prof Tonia Douglas

1:30 PM

LUNCH

2:00 PM

CONCURRENT WORKSHOP SESSIONS PART 1

Workshop 1:

Navigating the first five years including the use of modulators.

Facilitators -  Professor Cass Byrnes and Assoc.Prof Tonia Douglas

Workshop 2:

Using technology in responding to changing care models with a focus on remote monitoring

Facilitator - to be confirmed

Workshop 3:

Continuity of care - a transition model that provides for consistency and support of young adults.

Facilitator - Maggie Harrigan

Workshop 4:

Fertility, pregnancy, and sexual health in CF.

Facilitator - to be confirmed

2:45 PM

AFTERNOON TEA

3:15 PM

CONCURRENT WORKSHOP SESSIONS PART 2

Workshop 1

Building a stronger, more connected CF community including siblings and other family members.

Facilitator- Maggie Harrigan

Workshop 2

Navigating psychosocial and mental health including neurodiversity, how to keep everyone safe.

Facilitator - Dr Yelizaveta Sher

Workshop 3

Thriving longer: navigating aging transplant, and the evolving journey of CF.

Facilitators - Professor Elizabeth Tullis and Dr Mark O'Carroll

Workshop 4

Holistic approaches to CF care: diet, exercise, and lifestyle.

Facilitator - Dr Juliana Bailey and Jenny Hauser

4:00 PM

Plenary 4 | keynote

Aging with grace

Dr Yelizaveta Sher, MD, FACLP

4:30 PM

Fireside Chat 

Navigating the lived experience of CF and overcoming challenges

Speaker - Lily Tew

5:00 PM

COMMUNITY UNPLUGGED

At the conclusion of the symposium stay on for some drinks and nibbles to connect and share your experiences.

6:00 PM

DAY CONCLUDES

Aging with grace

Dr Yelizaveta Sher, MD, FACLP

5:00 PM

DAY CONCLUDES

Registration.

Don't miss your chance to be part of the NZ Cystic Fibrosis Symposium 2025 secure your seat and be a part of shaping the future of CF care in New Zealand.

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64 Grafton Road, Auckland 1010

PO Box 110 067, Auckland Hospital 1148

P/    09 308 9161

E/    community@cfnz.org.nz

W/   www.cfnz.org.nz   

Charity # CC10274

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